Who we are
CLL Support is a patient-let UK Charity. Our mission is to support and empower Chronic Lymphocytic Leukaemia (CLL) patients, and Small Lymphocytic Lymphoma (SLL) patients, their families and supporters through education and access to reliable, relevant and current information. (CLL and SLL are slightly different forms of the same disease.) We also represent CLL and SLL patients in discussions with government, pharmaceutical companies, other leukaemia charities and the National Institute for Care and Health Excellence (NICE).
Our charity was founded in 2004 by patients with Chronic Lymphocytic Leukaemia (CLL) and their partners. It continues to be run by volunteers, most of whom have been personally affected by CLL or SLL. Currently, we have more than 3,000 members.
It is now time for some of the trustee team to stand aside and for new members to join. One of the roles we are looking for is a Trustee-Treasurer to join the trustee team in the next six months and help keep this patient-led charity at the forefront of CLL developments.
All the trustees who will be stepping down have agreed to work alongside the new appointees as they settle into their roles. The Trustees meet 6 times a year, usually in London or Birmingham, but virtual attendance is also possible. The Charity employs two part-time members of staff to provide the administrative support we need. Our annual income is of the order of £150,000.
The Role of the Trustee – Treasurer
The role of the Trustee – Treasurer would be to oversee the general administration of the Charity’s affairs, not only around financial matters but also in respect of the regulatory requirements of the Charity Commission. The Trustee - Treasurer will be a key member of the Trustee team. For this particular role, we feel that sympathy with our aims and relevant experience are more important than having personal experience of CLL or SLL.
The proposed areas of responsibility would include preparing financial records; day-to-day financial operations; payroll; insurance; taxation; management of the Charity’s reserves; budgeting and annual accounts and regulatory matters.
For further information
Former ICAEW President Dr Hilary Lindsay, herself diagnosed with CLL in 2009, joined the Trustee board a year ago and will be taking over as Chair of the Trustees next April. She would be delighted to talk to anyone who might be interested in knowing more about CLL Support and the Trustee – Treasurer role. Please email her at email@example.com